Abstract Palliative medicine is the study and management of patients with discomfort present, progressive, and evolved, for whom the prognosis is limited. The goal of palliative care, is to achieve the best quality of life for patients and their relatives. Palliative care for children is a developing area of care that is not yet widely recognized as a specialty in its own right. Palliative care aims to support children with life-limiting conditions and their families to maintain quality of life. A life- threatening illness is one where there is a high probability of premature death due to severe illness, but there is also a chance for long-term survival to adulthood. Children’s palliative care differs from adult palliative care. Provision of pediatric palliative care around the world is scant. There are many reasons for this such as financial, lack of trained professionals, and a lack of general awareness by the public or policymakers. Despite these barriers, many countries have found ways to provide this care and these countries are both resource-rich and resourcepoor. It is important for these countries to share their experience, which includes valuable information on how barriers were overcome and programs were developed and implemented. Only through information dissemination will countries with no programs be able to learn from others and to identify strategies that they can be used to help advance the pediatric palliative care movement worldwide.

Chapter 18 Palliative Care in Pediatric Patients

ASTUTO, Marinella;
2014-01-01

Abstract

Abstract Palliative medicine is the study and management of patients with discomfort present, progressive, and evolved, for whom the prognosis is limited. The goal of palliative care, is to achieve the best quality of life for patients and their relatives. Palliative care for children is a developing area of care that is not yet widely recognized as a specialty in its own right. Palliative care aims to support children with life-limiting conditions and their families to maintain quality of life. A life- threatening illness is one where there is a high probability of premature death due to severe illness, but there is also a chance for long-term survival to adulthood. Children’s palliative care differs from adult palliative care. Provision of pediatric palliative care around the world is scant. There are many reasons for this such as financial, lack of trained professionals, and a lack of general awareness by the public or policymakers. Despite these barriers, many countries have found ways to provide this care and these countries are both resource-rich and resourcepoor. It is important for these countries to share their experience, which includes valuable information on how barriers were overcome and programs were developed and implemented. Only through information dissemination will countries with no programs be able to learn from others and to identify strategies that they can be used to help advance the pediatric palliative care movement worldwide.
2014
978-88-470-5515-5
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/20.500.11769/60882
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